There is hope

Today was a blessing. We got to do a video chat with Rosemarie and her son Brian. Congrats to Brian as he is going to complete one year without steroids on October 6th. Read his story here.
Thanks to them, Faiz finally got firsthand proof that TSW works.
Currently the bath is still the only place he can sleep. When he comes out of the bath his hand soak up so much water as to resemble a sponge. We can actually squeeze his hands after a bath and the water comes out.

I snapped this picture today of his arms after a bath and applying Vaseline.

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Seems a bit better but still very itchy.
Let’s see what the next few days will bring.

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