It’s been seven years and several months since we stopped using topical steroids.
His condition is good/stable, meaning no flares in the past few years. He still itches but not like the withdrawal. He has scars on his forehead arms and legs. He also has skin discoloration across his torso and chest and back. The discoloration becomes more prevalent when he’s out in the sun. It’s like white blotches spread out. Most of the time now when he goes out he wears a hoodie even in the heat because he’s conscious about his appearance.
He is completely independent as far as self-care for his condition. He’s going to college working out regularly at the gym. He also loves boxing and goes sparring all the time.
For people who are early in the stages of TSW, I want you to know that his current condition doesn’t prevent him from doing what he wants to do.
He has no burning, no shedding, no oozing or any other complications of TSW besides the itching which is something he can handle. He is sleeping fine, able to go swimming or out in the sun ( although he avoids this is it causes discoloration of the skin )
For all of you who are going through this, I pray that you heal quickly, safely and can return to normalcy.